I have it and hate it.  My accupuncturist gave me an anti-inflammatory diet, but I make myself crazy with it because it says no wheat or corn and a bunch of other stuff.  I get accupuncture every other week or so and lay there for an hour with at least 20 needles in my feet and legs.  It does help a lot, but I wanted to get some advice on what else I can do naturally.  I take 5 mg of melatonin nightly for sleep, but the pain is crazy and I can't get anything stronger than an anti-inflammatory from my doctor because she says it won't help.  All the meds I have tried haven't worked or gave me side effects.  I even did a drug trial I was so desperate, and that worked, but of course that got dropped.  Any suggestions would  be great.

My girlfriend Maki has fibromyalgia, she told me about a supplement called modifilan (dried brown seaweed extract) and says she can't do without it.  It bonds to heavy metals and other toxic substances in the body and causes the body to expel them.  But she says she has more energy and less pain if she stays on it.  Several websites sell it online.
The superhero diet will definitely benefit you with inflammation too.
Best wishes,
xoxoxo
Donna

Thanks I have never heard of that.

I really hope it helps.  No one should have to live in pain.
xoxoxo

I also have fibro and I have tried so many things over the years.  I think I have finally come up with a supplement regimen that works for me.  Also, I was referred to a doctor in FL who administers peptide/amino acid injections and it has helped me sooooo much.  I actually have 2-3 weeks out of the month that I feel normal and have energy, etc.  The downfall is its expensive, plus I live in IL and had to travel to FL for the first visit.  His name is Dr. Dakos and if you google that name you will find his website.  So far with all the research we've done, we cannot find anything bad or wrong with this protocol.  Whatever you do, don't use Lyrica, its bad stuff and research on the interenet everything you do. If you want to discuss further, add me as a friend and we can talk.

I have had Fibromyalgia for over 20yrs (since I was in my teens).  I have been on every drug you can think of at one point or another.  Antidepressants, pain meds, muscle relaxants etc.  At one point I was pretty much immobile. Then I decided to change my diet and take control of my health.  I am not vegan and still eat meat (chicken) and fish on occasion, however, the majority of my diet is grains, vegetables, fruits, legumes and some tofu (I have to avoid soy).  Since changing my diet my Fibro has improved greatly.  Other things have helped, such as visiting a naturopathic doctor, acupunture, massage therapy and the chiropractor.  The frustrating part of Fibro is trying to find what combination of things works best for you since it effects everyon differently.  I no longer take any meds for the fibro, however, my GP recently gave me samples for Lyrica to try.  I didn't want them as I have other health issues (hypothyroid and sarcoidosis) that I know are the source of my current problems she disagreed, refused to adjust my those meds and gave me the Lyrica.  I agree with Sandy don't take this.  I pretty much lost 2 weeks of my life, and I was on a very low dose. 

I was on Lyrica and it did work for me for a little while, but then started to affect my vision.  I have been trying the Curamin for since Friday and might be noticing a difference.  I just can't get rid of my pain and over the counter is not working.  I really don't want to take anything, but need something because you can't live in pain constantly.  I have not tried the modifilan yet, but I think I will give that a shot with teh Curamin.  I do get accupuncture every other week and it does help some too.  It is really hard to find the right combo.

I actually heard someone this weekend say that fibro was in your head.  I almost turned around and choked her. 

Thanks so much for the input. 

Fibro is one of the toughest disorders that acupuncturists routinely see.

I advocate strongly for the superhero plan. I have had several patients experience remission with this approach.

The anti-inflammatory diet is meant as a test to see if you improve without the most common allergens in you diet. If no improvement occurs after a few weeks then you can move on to try something else.

Some patients reported improvements with exercise, but that is difficult for these patients due to pain.

Superhero for three weeks is worth a try.

Thanks a lot.  It is nice to have a time frame to work with.  I did start to feel better right when I started being vegan, but I think that I have let  too many processed foods creep in as comfot food. 

I too have fibromyalgia, but it is under control now.  I was diagnosed with it over 10 years ago when I was at my very worst.  Constant severe pain, couldn't walk my feet were so inflamed.  Couldn't shake hands or even hold onto the steering wheel.  But now all is as well as could be expected.  Drugs did not work for me, they only made me worse...Acupuncture made me worse.

But the one thing that changed my life was exercise.  Now...how could I exercise if I couldn't even walk on my feet?  I did something called aqua jogging.  You put a belt on that lets you float and you are floating upright in a pool and you "jog" or "cycle" with your feet for about 1 hr. a day.  As I got better, I moved on to Yoga (started with Inyengar style).  And did that for years.  I still do.  But now I am able to also do boot camps, pilates, etc.

Hang in there...it does get better.  Please try the aqua jogging if you can.  It gave me back my life.

So I just got off the phone with Maki and she told me about this:  A doctor who discovered that guaifenesen (?)  alone can help the body to deal with fibro by aiding the kidneys... i think that is what she said...  Anyway, this is an over the counter drug used for sinus isues, but she said within one month she started to have energy and very little pain.  Now a year later she has no pain except with high pressure storms and such!
http://www.amazon.com/What-Your-Doctor-About-Fibromyalgia/dp/0446675121
http://fibromyalgiatreatment.com/